Leukemia and Lymphoma Society

Westchester Chapter

1311 Mamaroneck Ave. Ste. 330

White Plains, NY 10605

914 949-0084

Contact Person: Denise Raptoulis

 

Upstate New York/Vermont Chapter

6 Automation Lane

Albany, NY 12205

518 438-3583

Contact Persons: Rachel Hunt/Susan Koberel

 

NYC Chapter

475 Park Ave. So. 21Fl.

New York, NY 10016

212 448-9206 ext 259

Contact Person: Shirley Moy

 

Fairfield County Chapter

25 3rd. St. 4th Floor

Stanford, Conn. 06905

203 967-8326

Contact Person: Phyllis Osterman

Provides educational materials, copay assistance program for certain blood cancers, referrals to other support services and materials for schools and teachers.

 

 

Children’s Brain Tumor Foundation

274 Madison Avenue, Suite 301, New York, NY 10016

212 448-9494

Their mission is to improve the treatment, quality of life and long term outlook for children with brain and spinal cord tumors through research, support, education and advocacy to families and survivors.

 

 

Brain Tumor Foundation

Provides resources, support, education and advocacy for adults and children and their families.

 

Children’s Neuroblastoma Cancer Foundation

360 W. Schick Rd. Suite 23 #211, Bloomingdale, Il. 60108

866 671-2623 / fax 630 351-2462

info@cncf-childcancer.org

Dedicated to fund-raising, support, research and advocacy for children with neuroblastoma and their families. Parent-to parent information network and sponsors of a conference for parents and professionals every odd numbered year.

 

 

Retinoblastoma

Dedicated to advancing health care through molecular diagnostic tests.

 

 

www.daisyfund.org

A resource for parents and medical providers. Provides education, emotional and concrete referrals for children and their family

 

 

Sarcomas – Dani’s Foundation

Contact: Martha Simmons, Executive Director

martha@danisfoundation.org

1600 Broadway, Suite 2400, Denver, CO 80202

303 601-1881

The Dani’s Foundation patient assistance grant program will provide once per year financial payment (up to $500/patient/year) paid directly to the patient’s vendor.

 

Sarcoma Foundation of America

Provides a variety of information on all sarcomas.