American Cancer Society, 75 Davids Dr., Hauppauge, NY 11788
Ages 6-18 in treatment or in remission.
1332 Pittsford-Mendon Rd., Mendon, NY 14506
1 800 785-2135
All ages in treatment or in remission.
151 West 30th St., New York, NY 10001
Ages 6-21 in treatment or remission for young people of Jewish faith and culture. Also offers many other support services.
35 Acadia Rd., Casco, ME 04015
All ages. A unique program offering year-round programs for children with life-threatening illnesses and their immediate families.
565 Ashford Center Road, Ashford, CT 06278
The Hole in the Wall Gang Camp is a year-round center serving children and their families coping with cancer, sickle cell anemia, and other serious illnesses.
97 Hidden Valley Rd., Lake Luzerne, NY 12846
Ages 6-16. Camp and year round activities.
2169 Grand Concourse, Bronx, NY 19453
Ages 6-14. A traditional sleep-away camp for kids with cancer located in Blairstown, NJ.
Pearl River, 600 Bear Ridge Road, Pleasantville, NY 10570
Ages 3-16 day camp for children with cancer and their siblings. Transportation can possibly be arranged if not possible for you to bring the children yourself.
*Please speak to the social worker assigned to you to expedite your camp application and for further details.
Provides services and support to young adults 18-35 to encourage students to pursue higher education.
Provides free college admissions and financial aid counseling to high-school and college aged young adults.
Disease Specific Resources
Leukemia and Lymphoma Society
1311 Mamaroneck Ave. Ste. 330
White Plains, NY 10605
Contact Person: Denise Raptoulis
Upstate New York/Vermont Chapter
6 Automation Lane
Albany, NY 12205
Contact Persons: Rachel Hunt/Susan Koberel
475 Park Ave. So. 21Fl.
New York, NY 10016
212 448-9206 ext 259 203 967-8326
Contact Person: Shirley Moy
Fairfield County Chapter
25 3rd. St. 4th Floor
Stanford, Conn. 06905
Contact Person: Phyllis Osterman
Provides educational materials, copay assistance program for certain blood cancers, referrals to other support services and materials for schools and teachers.
274 Madison Avenue, Suite 301, New York, NY 10016
Their mission is to improve the treatment, quality of life and long term outlook for children with brain and spinal cord tumors through research, support, education and advocacy to families and survivors.
Brain Tumor Foundation
Provides resources, support, education and advocacy for adults and children and their families.
Children’s Neuroblastoma Cancer Foundation
360 W. Schick Rd. Suite 23 #211, Bloomingdale, Il. 60108
866 671-2623 / fax 630 351-2462
Dedicated to fund-raising, support, research and advocacy for children with neuroblastoma and their families. Parent-to parent information network and sponsors of a conference for parents and professionals every odd numbered year.
Dedicated to advancing health care through molecular diagnostic tests.
A resource for parents and medical providers. Provides education, emotional and concrete referrals for children and their family
Contact: Martha Simmons, Executive Director
1600 Broadway, Suite 2400, Denver, CO 80202
The Dani’s Foundation patient assistance grant program will provide once per year financial payment (up to $500/patient/year) paid directly to the patient’s vendor.
Provides a variety of information on all sarcomas.
Head & Body Gear
1 877 477-4287
A comfortable wig alternative headwear.
A shirt devised by a grandmother to hold the tubes of a Hickman catheter.
Important Web Sites
A comprehensive site for childhood cancer. A joint effort between COG (Children’s Oncology Group) and CCF (National Children’s Cancer Foundation) to provide information and promote research.
Site for survivorship issues.
Website dedicated to help patients and families create healthier meals during and after treatment.
Can provide the telephone number of the local ACS office serving your area: provides general info related to disease and may include reimbursement for transportation, medicine and medical supplies. Summer camp for children aged 6-19.
Free resources (books and dvd). Orders can be made directly from the website.
6601 Frederick Road, Baltimore, MD 21228
1 800 933-5470
A national, non-profit organization with unique programs that provide support to children and their families facing cancer. The program most used by our families is the Retreat Housing program. This program offers a vacation, free of charge, in 4 locations; Ocean City, MD, Fenwick Island in Delaware, Deep Creek Lake, MD, and Sedona, Arizona.
P.O. Box 3047, Middletown, N.Y. 10940
845 344-3946 / Fax 845 342-5820
Provides financial assistance (transportation and food), information and support to children diagnosed with cancer and their families in Orange, Ulster, Dutchess, Sullivan and counties and Pike County, Penn. Families can contact the organization by phone or e-mail.
275 7th Ave., NYC 10001
1 800 813- HOPE
A national nonprofit agency offering a range of support services including counseling to cancer patients and their
875 Mamoroneck Avenue, Suite 204, Mamaroneck, NY 10543
Providers of professional services for people with cancer and those who care for them. CST covers the lower to mid Westchester County area up to White Plains. Call for list of services and support.
Provides a variety of supports for patients and families coping with childhood cancer. Must be under age 18.
Friends of Karen
118 Titicus Road, P.O. Box 190, Purdys, N.Y. 10578-0190
914 277-4547 / 1 800 637-2774 / For Initial Referral 1212 308-1378 ext. 3
Provides comprehensive financial, emotional and advocacy support to children until 21 years old with terminal and life-threatening illnesses and their families.
An organization started by one of our patient’s family. The mission is to recognize the heroics of children battling life-threatening diseases together with their siblings and caregivers through an award program; provide activities and events for Giant Kids and the their siblings designed to enrich their lives during and following medical treatments; and to raise money for research programs focused on curing pediatric cancer and related blood diseases. The organization sponsors and organizes an annual, free family fun day at Camp Kiwi in Mahopac, NY. the last Saturday of July. Check with your Social Worker for exact date.
80 Maple Ave., White Plains, N.Y. 10601-5105
A free cancer support community offering a wide range of therapeutic activities and educational programs. Noogieland is a magical space with fun activities and support for children. Various supportgroups for parents of children with cancer or cancer in the family, in addition to groups for children, teens and family events.
Provides educational information and resources specific to the Hudson Valley.
500 No. Bdwy Suite 800 St., St. Louis, MO 63102
1 314 241-1600 / Fax 314 241-1996
Serves as a financial, emotional and educational resource for families with children with cancer. Support is through their Family Support Program (on-line community), Transportation Assistance Fund and Emergency Assistance Fund ($200 per year per family).
A non-profit organization that creates personalized songs on CD or cassette for hospitalized and homebound children.
Social Security Disability
1 800 772-1213
SSI/ SSD is a government program that pays monthly benefits children can qualify for if they meet Social Security’s definition of disability and if the family income and assets fall within the eligibility limits. Young adults over 18 may apply and not have parents income considered.
Mission is to improve the quality of life for children facing life-threatening and chronic illnesses through the power of team. Courageous kids are matched with local college athletic teams. Team Impact children are drafted onto the team and become an official member of the team from Draft Day through to Graduation. The child joins the athletic team and the student athletes join the child’s support team. The child gains great strength, camaraderie and support and the student athletes are taught lessons about courage and resiliency. Referrals are accepted on line either by medical providers or the family.
What About Siblings?
The Social Work Department along with the Child Life and Expressive Arts Therapy Program provides a program for Siblings (Ages 5 and up) three times a year. This is a therapeutic program that addresses the needs and feelings of siblings in a fun, safe environment. Your child/children will be invited by your Social Worker and/or look out for a flyer at the Infusion Center for this event.
To honor, support and recognize brothers and sisters of children with cancer. Now has merged with Alex’s Lemonade Stand. Not sure how they will support sibs. They fund research projects, travel program ( at participating hospitals- Columbia and NYU), develop resources.
Young Adult Resources
1 818 737-1866
Supports patients ages 18-40 undergoing cancer treatment. Provides financial assistance with daily needs not covered by insurance.
89 So. Street Suite LL02, Boston, MA 02111
617 938-3484 / Fax 484-842-2643
Is a non-profit organization designed to help young adults ages 17-39, recover from the devastating financial impact of cancer treatment. They provide $, legal and work assistance.
PO Box 586 rock Hill, NY 12775
Advocates for the interests of young adults with rare cancers. Their mission is to improve the quality of life as well as emotional support for patients. Financial grants can be awarded for young adults between the ages of 15- 35, undergoing treatment and a resident/citizen of the USA.
This Star Won’t Go Out
118 Billings Street, Quincy MA 02171
Provides $ assistance for patients ages 0-26, in the form of a grant (maximum, $2000 usually for rent or mortgage or other urgent bill. Wait list is 2-3 months. Foundation was started on proceeds of sale of a book, Esther’s Book.
Web Sites for Young People
Resources for young people with cancer.
Online support group and resource for young people in their 20’s and 30’s.
Online support for teens.
Resource for young adults.